GenV is Australia’s largest and most inclusive research study of children and parents. Of ≈125,000 participants, ≈50,000 are children.
This Portal is where researchers can:
Research approaches
Access data
Use curated datasets to answer research and policy questions.
Access biosamples
Extracting data from biosamples for biological research.
Nested studies
Embed registries or studies within GenV.
Intervention Hub
Conduct interventions, trials and quasi-experiments, evaluate programs and policies.
Suits you if you want to access GenV collected or linked data to answer specific research or policy questions. You may have or be applying for independent funding.
Access GenV's data resource to conduct standalone research and analysis.
Suits you if you want to design and deliver a research project within or alongside GenV, or access biosamples. Some collaborations may involve joint funding or grant application opportunities.
Collaborations may include: co-participation, data or biosample collection, biosample analysis, data linkage expansion, trials & interventions. Some collaborations may involve joint funding or grant application opportunities.
Data, results, and outputs are returned to GenV for approved future use, further enriching it as a shared resource that benefits the entire research community.
From your first enquiry to results - here's what the research journey looks like with GenV.
Explore data and biosamples
Browse available data & biosamples using the GenV Cohort Explorer and Data Dictionary
Register & apply
Create your account and submit your Data & Biosample Access Request
Onboarding
Once approved, complete training and sign agreements
Analyse data and biosamples
Access your data, biosamples and analysis environment
Explore who's in GenV. Browse participant characteristics to understand the data available for your research.
Explore data available through GenV. Learn more about the thousands of variables that can support your research and analysis.
Published and working papers from the GenV research program.
Wang Y, Marzan M, Yang Z, Crowe M, Moslehi M, et al.
Hughes EK, Siero W, Gulenc A, Clifford S, Frugier T, et al.
O'Connor M, Knight K, O'Connor E, Hughes EK, Goldfeld S, & Olsson CA
See the research already making use of GenV.
Some young children stop gaining new skills. They can even lose skills they once had – like language and walking. With funding from the Medical Research Future Fund (MRFF), GenV an...
ViewSome children are born with rare diseases that are not always obvious at birth. The EpiGNs team are testing a new way of screening for rare diseases in newborn babies to help under...
ViewMedPaLS is looking at how medicines are used during pregnancy and breastfeeding to understand if taking medications has risks or benefits for women and their babies. MedPaLS will f...
ViewGuides, documentation, and answers to common questions – supporting you to work with GenV data and biosamples
Describes GenV’s study design, who can participate, how families are recruited, and the data and biosamples collected.
ViewDescribes the children, parents, and guardians participating in GenV, the composition of the Advance and Cohort 2020s cohorts, and the data and biosamples collected to May 2025.
ViewExplains how to explore, request, and use GenV data and biosamples, including approvals, governance requirements and researcher responsibilities.
View